Thursday, August 24, 2006

6 months adjusted


The babies are 9 months old already! I just can't believe in just 3 months from now we'll be celebrating their 1 year birthday. Time is really going by fast. Since they're 9 months old chronologically that means they're actually supposed to be 6 months old. They have been learning so much lately, they just amaze us everyday! Here's some things that they are each doing:



Katelyn: Katy is getting very big, I'm guessing she's close to 14 lbs now. She's is VERY active, and is army crawling, rolling everywhere she wants to go, and is almost sitting up without any support. She still can sit very well with the boppy pillow for support. She's becoming very vocal, and is making lots of new sounds. We always joke that she's extra loud to over compensate for her sissy's lack of voice. She's eating about 25 oz of formual per day. She still wakes up at least once per night for food, and a few others for her binky. Her personality is really starting to take shape, and we can tell that she's definitely going to be the "drama queen". She loves attention, and loves to be held. Her favorite things to do include rolling all over the place, playing with anything she can see her reflection in, playing games like pat-a-cake, or jumping while I hold her. And her most favorite thing is her hands. She loves to look at them, and does so often. She also likes to look at our hands too, and will play with our fingers. She is also in love with her sissy, and is very aware, and interested in her. There are times that she'll get crabby and we can't figure out what's bothering her, but if we lay her next to Mady she'll calm right down. It's very cool to watch her interact with Madelyn. She may only be 1 minute older, but she really does act like the older sister. Katelyn is a very determined baby, and when she sets her sights on something she wants she figures out how to do it. We are very proud of Miss Katelyn and are thrilled to see her make such HUGE amounts progress. She's such a blessing.

Madelyn: Little Miss Mady is just such a sweetie! She is over-all the more mellow of the 2 babies, and has a very laid back, go with the flow kind of personality. Her favorite things to do include; stressing Mommy & Daddy out, watching her brothers play, watching the t.v. and her newest favorite thing is sitting like a big girl in her Bumbo Baby seat. She's still learning to roll consistently, and can do it pretty well now. She is still only rolling from her back to tummy, and only to her right side...but she's gotten close to going from belly to back a few times. We can really tell how hard she tries to acheive new things, and are sure that when her therapies start, she'll begin to make more progress. She is also getting much better at transferring small objects like her binky from hand to hand, and is also getting very good at putting things in her mouth. She loves to kick, and is starting to payback Katy for all those kicks in the head. Last week Mady weighed in at 12 lbs 12 oz. She is currently eating about 15-18 oz of formula per day. She's very stubborn when it comes to eating, and will sometimes go 12 or more hours at a time without eating! STINKER!! Feedings really have to be on her terms now, and she will only eat if she's REALLY hungry. No more waking her to eat right after Katelyn at night, she is now marching to the beat of her own drum. She'll go from refusing to eat one minute to absolutely starving & hysterical the next. One thing that has let us know just how smart she is, is when she cries now, she blows rasberries to make noise. She's figured out how to get attention in her own way, since her cry is still very weak, though I must say it has slightly improved. She tries very hard to make noises, but mostly just sounds like a gremlin. It's so cute, and pitiful at the same time. Madelyn is very unique, and we are so blessed to have her. She is such a happy baby, and loves to smile. We are so proud of her!

So that's pretty much the jist of it, they are changing so much, and it's so fun to see them develop their own little personalities. We are all enjoying them so much!

In case you can't tell Katelyn is on the left, Madelyn on the right! :) I'll post more pictures over the weekend!

Friday, August 18, 2006

Aaron the ENTERTAINER

This kid just makes me smile :)

Aaron is such a great little entertainer. He LOVES to play his harmonica. He actually loves to play any instrument, and loves rock music. Ian & I think he's going to be a musician. He always expects applause at the end of a performance, he loves it when we cheer real loud & clap.
The babies always give him their undivided attention.


He's just been such a ham tonight, playing with the babies, trying to get them to laugh at him. He played Peek-A-Boo, and made silly faces. These girls are a tough crowd though, and didn't laugh, but he got plenty of big smiles from them. They just love to watch their big brother Aaron play, he intrigues them so. He's such the little entertainer!!!


Play on dude!

Friday, August 11, 2006

Katelyn's newest talent

Lookie what Katelyn can do!!! She's been getting so good at sitting with just a little support, so tonight I thought I'd try to sit her on the floor with the boppy pillow for support, and she sat so good! Just a week ago we tried and she couldn't do it all. Now look at how big she is. I'm so excited for her. Here is Madelyn in her chair cheering on her sissy! You can tell she was kicking and waving her arms all around. Go sissy Go!!!!!
Madelyn & I watched the boys play on their bikes outside while Katy slept inside. Mady doesn't like to nap much these days. She'll take little 15-30 minute naps a few times a day. She's afraid of missin all the action. :)
I know it won't be long till Katelyn is sitting with no support. She's getting very strong. She is also log rolling all over the place now. I'll lay her on the floor and go into another room, and when I come back in I found she's rolled clear across the living room. At first I thought the boys had dragged her or something. She's so mobile now! She's even trying to get her knees up under her! She does that rocking back & forth thing, like she just wants to take off. The scratch on her forhead is from the air vent on the floor, she rolled across it, and it scratched her head.

Monday, August 07, 2006

Horrible trip to Portland

Friday was the girls big appointments at OHSU in Portland. It's a bit of a drive since we do not live in the Portland area, but we are used to it from having to do it countless times while I was being seen there, and the girls were there in the NICU. It'd been a few months since we'd done it though, and I so do NOT miss it. It was an awful day! I was reminded why I HATE it there so much! I think the vibe there is just not good, mostly it's just a cold and unfriendly place. They may have some of the best specialists in the Northwest, but they could sure use some training in bedside manner & compassion.

The appointment for Madelyn's swallow study was supposed to happen first @ 1:30. Then both girls had appts @ 2:30 at CDRC follow up clinic with the speicalists for their nuero evals. So we wait & wait & wait some more and they still aren't calling us back for Mady's swallow study. I should mention that Mady had to be brought hungry, and she hadn't eaten since 9:45 am. Finally around 2:30 someone comes to tell us it'd be about 15-20 more minutes because of an emergency. I told them we were supposed be at another appt. at 2:30 which we were now late for. The receptionist told me that the other clinic was aware we were being held up, and it was fine. At this point Mady's getting pretty hungry, and I'm getting pretty pissed off. I was able to get Mady to sleep, so she wouldn't care about being hungry anymore. Finally around 3:15 one of the Physical Therapists from the CDRC clinic comes out and asks who we were. She asked how long we'd been out in the lobby waitng, and I told her since 1:30. They had NO IDEA we were out there, and radiology didn't communicate with them at all! So the whole time we're just sitting out there, we could've been having the girls evals done, and they could've just called Mady out when they were ready for her. UGHHHH!!! This place is ALWAYS like this!

Finally at 3:45 they get Madelyn in for her swallow study. She'd gone 6 hours without eating. The study showed that she is still aspirating, and so she needs to have her bottles thickened up a LOT more. It now has to be about the consistancy of between honey, and pudding, and even then she still aspirates occasionally. They also want us to start serving her bottles refrigerator cold, because she has sensory issues due to her paralyzed vocal cord. I guess it helps her feel the liquid, giving her better control when swallowing. Our poor girl! She doesn't seem to mind though, so it's all good for now. We escaped her having to have a G- tube (feeding tube) put in so we're very happy about that. They want her to start being seen by the feeding clinic there to follow her more closely, and to meet with a nutritionist to help her gain weight. Another swallow study in 6 weeks was recommended too.

So while Madelyn had her swallow study, Ian took Katelyn to get started on her nuero evaluation. It was hard to have the girls seperated, and not being able to hear what was going on with Katleyn or answer questions. Ian did fabulously though, and by the time I got in there they were all done with Katy. There were a few therapist and one Nuerological specialists to do the evals. Katelyn scored very well, and they all put her in the 5-7 month range on the Baley scale for all of her developments so far! That is wonderful news for Miss Katy. She was very sweet the whole time, and did everything they watned her to do. During the study, they have all these asessments to make. They basically observe the babies playing, and mark what they can/can't do. They want to see things that babies their adjusted age would be doing, so anywhere from 5-6 months would be on target for them. They want to see Katleyn back when she's 12 months adjusted, so around 15 months actual age, sooner if a problem arises.

Then it was Mady's turn. She had the same team of therapists, and they all agreed that her skills seem very scattered at this point. They scored her in the 2-4 month range on all of her developments this far. She scored lowest on visual responsiveness/reactiveness & speech, being around 2 months. Her motor skills are scattered between 2 & 4 months. They also noticed that Madelyn's left side is weaker, especially her leg, she tends to prefer doing everything with her right side. Her muscle tone seemed good, with minor stiffness in one of her ankles. So all in all Mady is delayed, but hopefully she'll catch up. No one seemed overly concerned at this point, and said it's too early to determine any type of long term issues Mady might have. They want to see her back in 3-4 months, or sooner if I feel there are problems. We will be looking into physical therapies through Early Intervention for her in the mean time, and having her vision tested next month to rule out any problems there.

Both girls also had their hearing tested, and they have excellent hearing! They don't need another test until they're 18 months. So that's really good news.

Our appts. got over and we were on our way back down the hill around 5:30. We of course hit rush hour traffic, which was VERY VERY BAD!!! It was actually the worst we'd seen it besides on Christmas Eve. There was no wrecks or anything, just idiot drivers. It took us an hour and 15 minutes to go 20 miles! So after all that riding of the brakes in our old mini van we lost our front brakes! They got so hot they were smoking. It took us over 3 hrs to get home, and that's with just stopping for food! It was a horrible horrible day! But we're all home safe & sound, and we don't have to go there again for a few months...hopefully!

Tuesday, August 01, 2006

Shots, Soreness, & Fever...OH MY

My poor babies had just awful reactions to their shots this time. They've been lathargic, and Mady had her first fever since coming home from the NICU. It's been a low grade temp reaching 101.2 & has been very hard to break. She also lost her appetite, and was only eating about 2-3 oz. @ a time. I've been giving both girls tylenol every 4 hours, and am thinking about running out to get some motrin, since the tylenol doesn't seem to be helping much. Katelyn had her first little fever too earlier today, but it broke after I gave her tylenol. They've also both been on the fussy side, and had a rough night last night. Madelyn's fever started in the evening last night, and I think that with her just not being able to get comfy was keeping her up. Both girls wanted to be held while sleeping, so Ian & I were happy to oblige. Though I must say it does wear on you after a while. They both seem to be a little bit happier right now, so hopefully the worst is over. These pictures were from last night right after they started not feeling well. This peaceful moment did not last long. Don't they look so sweet? Katy up top, Mady below.

Monday, July 31, 2006

Pediatrician Appointment

Both girls visited their pediatrician today, who we really love. It had been a while since they'd seen him, first off because the girls have been so healthy, and also because we had to reschedule our previous appointment, and he is always very booked for well check visits. They were each weighed & measured, looked over very closesly, and Dr. F. always asks a TON of questions. And of course to top off the fun of the whole situation they had their immunizations, 3 each. Madelyn always does pretty well, she cries for a minute or 2, then she's over it. She's so tough. Then there's Katelyn who thinks the world is coming to an end. She screams for a LOOONG time. So we always have her go last so that way I can give her extra loves, and cuddles to calm her down. So here are the stats on the babies:

Katelyn: 13 lbs 4 oz. !!! 24" tall Head 17"
Dr. F. said he would've like to see her with more "catch up" weight. But he thinks over all she is growing pretty well. They are not even on the growth scale for their actual age, so if we go by adjusted age of 5.5 months she'd probably be on the lower side. We got the go ahead to start veggies whenever I feel like.

He checked out Katy's development by asking me lots of questions on how & what she's doing, ie; is she rolling over both ways?, does she sit with minimal support?, does she grab things? does she coo, giggle, smile socially?,...and then he watched her movements, and had her do some things like, grab, grasp, put toy in her mouth, switch toy from one hand to the other, sit with minimal support...ect....He then said she's doing fabulously for her adjusted age, and told me she's around 6 months developmentally! That's pretty awesome. She's right on target for her adjusted age, and catching up to her actual age!!!

Madelyn: 12 lbs even, 23" tall, Head 16 1/4"
So as you all are probably aware by now, Madelyn has been showing signs of having some delays. She's definately smaller than her sis, and Dr. F. said she hasn't lost weight but her weight was very paralell on the scale. He'd definately like to see her gain a lot more weight. He also checked her development by asking the same questions, and watching her do things. It was very clear to him just by observing her that she is delayed. He noted that her movements, and developments are around the 3-4 month range in his opinion. He also told me that because she seems to prefer using her right hand over her left, it most likely indicates that her left side is weaker. She also only rolls to the right side and can only roll from back to belly, & she cannot sit well with minimal support. He diagnosed her as Developmentally Delayed, which can mean many things. We will hopefully have more answers when we go to the CDRC clinic this Friday for their Nuerological exams. Dr. F. said the specialists there will be better able to pinpoint her issues, and make a more clear diagnosis, if any. They will also be able to help us set up therapies for her if they believe she needs them. We pretty much were already aware of Mady's delays, but having a Dr. tell you that your baby is delayed is just hard to hear. I know it's not like hearing your baby is sick or anything like that, but we just want her to be able to do all the things her sissy can do, without having to work so hard. I will definately give more details when I get them.

Thursday, July 27, 2006

Mady pictures

For some reason I couldn't get these pictures loaded in the post below about how they girls are doing. Finally after many tries here some pictures of sweet Mady May. No, May is not her middle name it's actually Grace. But I call her Mady May McMabel, or Mady May for short.Mady's first time in the excersaucer. She's still a bit small for it and was pretty wobbley, but she enjoyed it for about 5 minutes.

What a cutie pie! She was smiling at her toys hanging above. She really has such a sweet personality, and is quick to smile at anything she finds amusing.

Wednesday, July 26, 2006

NEWS FLASH!!!! JACOB IS A 2 WHEELER NOW

Jacob was reluctant to ride his little bike, he wanted to jump on his big bike, which is still a bit to big for him. Once he figured out that he can really practice on this bike to get the hang of things, he really enjoyed it more. He's really confident on it & isn't in a huge hurry to ride the bigger bike any more.

Jacob is so proud to be riding on 2 wheels now! He just decided last week that he wanted to try to ride his bike without his training wheels. This all came about after he visited his friends Michael & Juan who are also 2 wheelers. So he told us "If I don't start riding without training wheels, I'm just gonna be stuck with a bunch of babies" Ian took off his training wheels, and helped him practice and get his balance, and VIOLA! He learned in an hour. He practiced his skills for the next 2 days, and now can ride like a pro! He's even doing little jumps & skidding when he stops. You are so awesome little dude!

Tuesday, July 25, 2006

8 months old ... 5 months adjusted

K: First time in the excersaucer. She had a good time reaching for the toys. She can sit in it pretty happily for about 10-15 minutes.
K: This is the reaction we get every time we try the rice cereal. She just spits it out all over, and screams like I'm torturing her. I am hoping to get the go ahead to start veggies, hopefully we'll get a better reaction!
K: Look at that concentration. She definately knows what she wants.

So the babies turned 8 months old on the 18th. This is a bit late, but I thought I'd write a bit about what and how they are doing right now.

Katelyn is growing so fast now. It seems like both babies were just going to stay itty bitty forever, but Katy is now probably 12 lbs 10 oz by now. And is outgrowing her 0-3 month clothing. The weight is a bit of a guess, since they won't be weighed until next monday. She eats about 4.5 - 5 oz. of enfacare formula. 4 bottles a day and one at night. She is usually the first to wake up at night for food at around 3:00 am sometimes a bit earlier. She is going through the phase of knowing when I leave the room, and protesting being put down. She likes to be cuddled and patted & rocked to sleep. She is actually very picky about this, and will fuss until you do it right. Katy takes 3 naps a day, morning, afternoon, early evening. She is becoming very active and loves to play on her tummy now. She is very good at holding herself up with her arms for long periods, and is learning to pivot & roll consistantly. She kicks her feet with good accuracy, and often kicks her sis in the head. She loves playing with rattles and is getting very good at putting them in her mouth to chew on them. Katy has been cooing more and more, so far she can make a very good AAAAHHHH sound, and her newest trick; she can click her tounge on the roof of her mouth. We've heard her laugh once so far, at her brother. I know she wants to laugh more, but just can't get the sound out. She's pretty much a happy baby, except when she's tired or hungry.

Madelyn is growing too, just a bit slower. She is about 10.5 lbs and is still fitting very comfortably in her 0-3 month clothing. She is still learning to keep her head up while on her tummy, she can do it well but gets tired out pretty quickly. Mady is still showing signs of having some motor skill problems, but can really do a lot. She is a very happy baby, and all you have to do is look at her to get smiles. She takes usually 5 oz of enfacare formula mixed with either rice cereal or thick it, as she still needs thickened bottles because of aspirations. She eats about 4 bottles per day and 1 at night. She always eats either right before or right after Katelyn's night feeding so that I can get more sleep. Madelyn's voice is still pretty non exisistant. She can make noise but because of her paralyzed vocal cord it is more squeeking and grunting. Which is very cute. She is actually very vocal for not having much of a voice. Mady usually takes 3 naps a day, but sleeps for shorter amount of time. She loves to look at everything, and especially loves watching her brothers play. She is starting to hold on to toys, but is still trying to get the hang of it. She really loves spending time on her activity mat, and practices her rolling from back to belly, which she is getting much better at. Madelyn isn't really picky about where or how she falls asleep, she usually just dozes wherever she's at when she's tired. She is a very content baby, and often gets less attention because of it. Her reflux seems to be pretty under control at the moment with her being on Zantac. But she still has problems with aspirations while eating (inhaling liquid into the lungs). She will be seing the OT/ST (occutpational/Speach therapist) on our next visit to OHSU on Aug. 4th. My biggest fear is that they'll want to put in a G-tube again, but I am pretty certain they won't. All in all she's doing well and is a very happy sweet baby.

Friday, July 21, 2006

From the top part 2: Monochorionic Monoamniotic diagnosis

JUNE 2005

Ian took the time off work to drive me 75 miles to OHSU in Portland for my first Peri appt. on June 14th. Little did I know then, we'd be making that drive countless times. OHSU is like a Mecca. It is a teaching hospital, so it is absolutely HUGE! They specialize in many things, and have our state's best Children's hospital; Doernbecher's. That is where my new Dr. was located.

Our first appointment was extremely long. We had our ultrasound with a very good and experienced technician. She took her time looking, checking over and over for even a slight hint of a membrane. It was obvious that there was none. At that point I was just 11 weeks along, so the babies weren't very big. But you could already see so much. After about 45 minutes of the technician looking and taking pictures of the images, she then left the room to get the Radiologist. When the radiologist came in, the whole mood of the room changed. It was more sobering. She then explained that she'd like to take a look at the babies herself. After checking for a while, she then started to explain her findings. She was certain that our pregnancy was infact a mono-mono twin gestation. She also thought at one point that the twins may have been conjoined. She had to probe them several times with the ultrasound wand to make them move apart from eachother... (apparently they liked to cuddle). When she gave us her diagnosis she asked us if we knew what monochorionic-monoamniotic meant. Of course we did from having already having a tentative diagnosis, and the research that I did on the internet. We were definitely fully aware.

Two hours from the start of the ultrasound we finally met with the Peri. Dr. Tolosa. He was a very nice man. He told us in laymans terms what we were in for. He gave us a lot of statistics, percentages of success, and again told us how extremely rare and high risk this pregnancy was. He also explained how rough it was going to be to manage. He said if I could make it to 24 weeks I should be hospitalized for constant monitoring. Delivery would happen by 32 weeks gestation, which is as far as mono-mono twins can safely be carried. There were so many risks of fetal death of one or both babies, especially as they grew. The bigger they got the more the likelihood of a "cord accident" resulting in losing one or both. The cord placement in the placenta was crucial, and was monitored closesly. In mono-mono twins the cords are often implanted in a very weak area. And with the babies sharing one small planenta there may be complications with the twins being malnourished in the womb.

At the end of the initial consultation, Dr. Tolosa mentioned that we could choose to terminate the pregnancy since the risks were so high. Ian & I knew that was not an option for us. We believed that these babies were given to us for a reason. Whatever the outcome they were ours.

The pregnancy from that point was managed by my O.B. here and the team of specialists @ OHSU. We were seen every 2 weeks by one or the other. Going up north once a month for the first 20 weeks, and being seen by Dr. Hovey once a month as well. Every appointment entailed a very long detailed ultrasound checking the babies' growth & development but mostly checking their cords for tangles, and knots. The ultrasound machines could detect the blood & oxygen flow through the cord. I learned so much I probably could have used one of those machines myself. We were able to find out the sex of the babies at around 16 weeks. I was a little bit hesitant at first to find out, because in a way I didn't want to get attatched to them out of fear. We were thrilled when during the scan the tech said it's GIRLS!! My dream of having a little girl was coming true times 2. Fortunately things went pretty smoothly until about 20 weeks. That's when all the action started.

Wednesday, July 19, 2006

So Touched

I have lots of posts in the works but for right now I just really feel like I have to share this: http://www.youtube.com/watch?v=WjPrL3n63yg It touched me deeply, and made me realize that even "if" Mady does end up with CP, she will be able to accomplish so much. And having her sissy help carry her along the way. Just so moving, and set to one of my favorite Christian songs. Warning: Don't watch if you're not in the mood for a good cry!

Monday, July 17, 2006

Katy & Mady 2 days old


Looking at these pictures makes me want to cry. It also reminds me of how far we've come. The girls look so tiny and frail next to my grandpa's hand. Weighing barely 2 lbs each, they certainly had a fight ahead of them. They are our miracle babies indeed. Still showing us what they are made of every day. Still fighting, still struggling, but growing & thriving as well. In their short lives they've endured more than some people go through in a lifetime as far as fighting for you life goes...
RDS, PDA, INFECTIONS, 6 BLOOD TRANSFUSIONS, BLOOD GASES, JAUNDICE, I.V.'S IN EVERY PART OF THEIR TINY BODIES, PDA LIGATION, VENT, CPAP, VENT, CPAP, A's & B's, NEC, BEING SEPERATED FROM EACHOTHER FOR SO LONG, BEING AWAY FROM THEIR MAMA & DADDY & BROTHERS, LEARNING TO EAT, GAVAGE FEEDINGS, PUMP FEEDINGS, MEDICATIONS, VOCAL CORD PARALYSIS, REFLUX, LOTS OF TESTING FOR EVERYTHING UNDER THE SUN, MORE TESTING, PUSHING THEM TO THEIR LIMITS, AND MUCH MUCH MORE!!! We are truly blessed with these girls. True miracles, gifts from God. I love you my sweets, and thank the Lord for you every day.

Wednesday, July 12, 2006

From the top: part 1

This experience I/We've had is the hardest thing I've EVER had to go through. And as difficult as it's been, it's a journey that I don't want to forget. So here's the first of several posts to to tell the story of this crazy roller coaster ride we've been on for the past year.

MAY 2005
Looking back I still can not believe it when I saw those 2 lines on the pregnancy test. I was extremely shocked. I of course called my friend Danielle right after I took the test in complete disbelief. She seemed excited, I however was mortified. Things were going so well for us. I had this great job that I loved, our family was a nice even number. How would another baby fit in? I was a bit afraid to see what Ian's reaction was going to be, sure that he'd feel the same as me. But to my suprise he was CALM. Much more so than me. He just said well it's another baby to love. After a week or so my feelings started settling down. I told Susanne at the store that I'm pregnant, but would not be leaving my job. I'd just need a short maternity leave. And I'd be back to manage the store. Things would work out.

A short time after the positive test, I started having some cramping. I called my Dr. to have it checked out. She sent me to the hopital imaging ceter, where they did an ultrasound. The following day my Doctor's office called. They totally should've asked if I was sitting down before they told me it's TWINS!!! I seriously almost fell over. The Doctor wanted to see me back a.s.a.p. to discuss it further. The nurse went on to tell me the twins are in one sac and they are going to be identical. WOW!!! Of course at this point I didn't have a clue as to what that really meant. So I went on in a clueless bliss for a few days, until my next O.B appointment.

Ian was in complete denial when I told him later that day. He didn't believe me, and totally thought I was joking. When he realized I wasn't joking, I think he seriously wanted to RUN. Just joking, well kind of. By the way I did tell him to sit down before I told him. Smart huh?

The next few days were spent telling a few of our close friends and family. We told my grandma right away who predicted that I was going to have identical twin girls when she first heard the news that we were expecting again. SPOOKY! Everyone was in complete shock, but seemed really excited for us. I'm sure they were all really thinking how in the H-E-DOUBLE-HOCKEY-STICKS are they going to handle that.

At my first O.B. appt. Dr. Hovey went into detail about what this pregnancy was going to be like for me. I was completely stunned when she told me how extremely rare this type of pregnancy is. That is when I first heard the term Monochorionic-MonoAmniotic twins also known as mono-mono or momo twins. In our type of twin pregnancy which only occurs in about 1% of twin gestations, the egg splits late, after the amniotic sac is beginning to form. So our babies were sharing one sac with no dividing membrane, and they were also sharing one placenta. The risks are extremely high, and this pregnancy has a mortality rate of somewhere between 50-60%.

Why so risky you ask? Well without a dividing membrane our babies are free to move about around eachother, tangling together and most dangerously tangling their imbilical cords. The tangles can lead to tight knots which can cut of oxygen/blood flow to one or both babies, which can lead to fetal death. There are many other complications that factor in because of only sharing one placenta which is usually very small for 2 babies.

Dr. Hovey told me she could'nt handle my prenatal care alone, and that I'd have to see a Perinatologist @ OHSU. She also wanted me to go there to have a follow up ultrasound done with a level II machine to rule out any misdiagnosis. We'd have to wait until I was somewhere between 10-16 weeks for a true diagnosis. So the waiting started. I spent the next 4 weeks in complete and utter horror.

Tuesday, July 11, 2006

Really cute pictures

Madelyn is on the left of these pictures. Look how cute they are holding hands. Katelyn's had enough, our little drama queen.

This picture of Aaron shows off his big baby blues Jacob's getting lots of freckles this summer, I tease him that all the little girls are going to chase him next school year. He's so adorable.

Katelyn found her voice today

Just as we were starting to worry wether Katelyn was ever going to make any other noises other than crying, she started cooing today! She has mimicked an AAAA sound before here or there, but nothing real consistant. But today she just started making some noise, with a real true AAAA sound. Jacob and I were right there listening and cheering her on. She kept it up for a good couple minutes. We are just so delighted in her new found voice. One of the BIG things in preemies born as early as our girls is speach delays. So of course the worry wart in me has been freaking out about when the girls are going to start cooing. I've been working with Katelyn especially for a long time trying to get her to at least imitate some vowel sounds, as the Nuerologist recommended at their last appointment. That was over 3 months ago, and now it's finally paid off!!! You could tell how impressed she was with herself, she of course loved being the center of attention.

Madelyn had a fun today too. She played on the floor on her activity gym, reaching for the toys above. She's also been trying hard to figure out the rolling over thing. She's done it a few times, but always gets hung up on her arm. Mostly she still likes to lay on her back though. As for Katelyn she's mastered the back to tummy roll.

We are really interested to see what the Nuerologist has to say about Mady on their next exam ( which is August 4th). She had a mildly abnormal first exam back in April. The things that have us concerned are mostly that she has very stiff jerky movements that a lot of time seem unvoluntary. Especailly when she is trying to do something or is excited, or overly tired. It is very hard to hold her because she arches her back a lot, she is just always in constant movement. Ian & I always joke that she's just a spaz, but deep down we are concerned. But of course I as most of you know am I HUGE worry wart so hopefully at this next appointment we will have all of our worries put to rest. For now she seems to be doing really well though, other than the spaz factor.